I couldn't help but share this little girl's story.
Once again, it hits too close to home.
Telaai was born last Thursday 8/2/12. After
being placed on her mom's chest she turned blue and could not breathe and was
transferred to another hospital to undergo testing. Shortly thereafter,
they found that she could neither breathe on her own or move her arms
and legs. She was then life flighted to Primary Children's Hospital.
Here is of the updates
"Last
night Telaai was transferred to Primary Children's hospital where she
underwent test by a Genetic Neurologist to see why she wasn't moving. We
talked and got an answer with a doctor who is a specialist in the
disease SMA (Spinal Muscular Atrophy and she said our baby is in stage 0
which is the worst stage you could have. She hasn't seen something like
this in over 14 years. Telaai's muscles are
so
weak already and will get progressively worse that she'll never get off
a ventilator or feeding tube. The quality of her little life just won't
be there as within a very short period of time she will lose all
functions of any muscles in her body. We don't get her long, taking a
day at a time. Right now she see's us, hears us, knows we are there.
Telaai came to this earth to save and teach a lot of people and she has
done that ten fold in the days she has been here. She is so brave and so
strong and so incredible beautiful. I will get to run and jump and hug
her in the millennium but for now, she did what she came here to do. Receive a beautiful body, look at her mommy and daddy and sisters. Thank
you for your prayers. We have been asking for a miracle and we got it,
her name is Telaai Milene Wiberg.
"
This upcoming Sunday, Telaai will be taken off life support.
My heart breaks for this family.
Sending many prayers their way.
If
there is anyone who would like to make a donation to help the
Wibergs pay for Telaai's medical bills and don't live near a Zion's
branch, you can mail a check to Zion's Bank 1220 S. 800 E. Orem, UT
84097. Write the check out to the Lyndsie Wiberg Donation Fund and put
the account number #041493552 on the check memo line.
Account #041493552
My sister has lost two sweet boys to SMA. I've been tested as a carrier because it's more common than you'd think! Praying for their family.
ReplyDeleteThis is so sad. I will keep this wonderful family in my prayers.
ReplyDeleteLove, Jenni
Oh my....what an amazing perspective for her heartbroken parents. She is a sweet beautiful baby girl. The way she is gazing at her parents brings tears to my eyes. I thought of my nieces and nephew's sweet Makenzie....also gone too soon from SMA-RD. I pray that disease is curable someday.
ReplyDeleteI always end up in tears when I read about these amazing, strong people you post about. Thank you for your example!
ReplyDeletethis breaks my heart..i never knew about this awful disease until i discovered many babies have had it in the blogs ive found...i hope they find i cure for it more than soon. that baby girl is so beautiful, and so is her family! we'll be praying for them, especially at this difficult sad time, they have an amazing outlook on this, thanks for writing about this so we all know.
ReplyDeleteI will certainly hold Telaai and her family in my prayers. What a beautiful baby girl. I, too, had never heard of SMA or SMA-RD until I came across Kendra and Ryan Webster's site for their baby girl Makenzie. My heart just breaks.
ReplyDeleteI will keep them in my prayers! xoxo
ReplyDeleteMatt is Brocks cousin. My heart hurts for them and we will be praying for them. What a strong family and an amazing perspective of the plan of salvation. She is beautiful.
ReplyDeleteThanks for sharing... I will keep this sweet family in my prayers!!
ReplyDeleteThank you for sharing this. I hope that the Wiberg family feels God's love for them and especially for their baby Telaai. Being a mother of an SMA child I will be praying that they have the strength that they are going to need.
ReplyDeleteThank you for commenting on my blog. The awareness needs to be spread and you are helping to do that.
I too will keep them in my prayers!!! And your sweet family as well!!!
ReplyDeleteThis little story is way to familiar. Prayers for someone who is just starting this journey.
ReplyDeleteThanks for sharing this, this is my second cousin's family. I have read your blog for a well now and it has helped me as I have struggled through infertility. Thank you for being willing to share your story and thanks for helping my family by sharing theirs.
ReplyDeleteI just read that their sweet angel Telaai returned home to heaven yesterday. I am so sad to hear of all of these moms losing their sweet babies but I know that they will get to be with them again and pray for their comfort and peace. Thank you for sharing your story and countless others.
ReplyDeleteMy son has SMA. Thanks for raising awareness. Hugs, Jen
ReplyDeleteThat is so heartbreaking. I will keep them in my prayers. Thanks for sharing.
ReplyDelete